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 Hidradenitis Suppurativa

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kel3182
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Female
Number of posts : 149
Age : 35
Location : Casino,NSW
Registration date : 2010-12-09

PostSubject: Re: Hidradenitis Suppurativa   Sat 11 Dec 2010, 10:55 pm

Oh WOW

This is not a thread i was expecting to see here and so happy to see it.

I have had this annoying skin condition for about 20 years now.. not bad considering im only 28.

It makes me hate summer and everything related to it :( Fingers crossed that a large weight loss will help with it all

Kel
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NutMeg
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Female
Number of posts : 769
Location : Australia
Registration date : 2009-12-15

PostSubject: Re: Hidradenitis Suppurativa   Sat 17 Jul 2010, 1:38 am

Hi cookies :)

It's insane that we have to explain the condition to doctors, isn't it? Don't take this the wrong way, but I am so glad someone else knows what I've gone through!

I'm 3 weeks post op, and since starting this adventure in April I've lost 20 kilos (actually 19.9 :P ) I've had a few 'little' flare ups but nothing, and I mean NOTHING like what I used to get. It's all looking positive from my perspective.

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footprints
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Number of posts : 32
Location : Adelaide
Registration date : 2010-07-06

PostSubject: Re: Hidradenitis Suppurativa   Fri 16 Jul 2010, 1:56 pm

Wow, I was incredibly surprised to see that others here had HS. I've had to explain what it is to just about every doctor that I've ever seen, even my endocrinologist.

I was told by my endo that I needed to lose weight. Essentially, she said that my skin does not cope well with the sebum produced by androgens. The more weight I have, the more of me there is to produce androgens. If I lose weight, the symptoms of HS should lessen. I'm really, really excited to have the possibility of getting rid of it.
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NutMeg
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Female
Number of posts : 769
Location : Australia
Registration date : 2009-12-15

PostSubject: Re: Hidradenitis Suppurativa   Sat 19 Jun 2010, 7:53 am

I have lost 10 kilos pre op, been drinking heaps more water than I used to, cut out caffeine, exercising regularly and lo and behold the only time I seem to get my flare ups is when I am ovulating and during menstruation. If this is a sign of things to come I will be a very happy camper!!
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NutMeg
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Female
Number of posts : 769
Location : Australia
Registration date : 2009-12-15

PostSubject: Re: Hidradenitis Suppurativa   Thu 04 Mar 2010, 3:03 am

Thanks applesauce :)

That's what I was hoping for :) Might do some more googling ;)

Sorry I didn't reply earlier, I was expecting a notice when someone replies, but didn't get one this time?? Weird.
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applesauce
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Female
Number of posts : 1999
Location : Perth Western Australia
Registration date : 2008-05-26

PostSubject: Re: Hidradenitis Suppurativa   Fri 19 Feb 2010, 9:35 am

From what I understand the weight loss itself can help in 2 ways less of the hormones running around and a healthier enviroment as in less sweat etc. I am NO exbert nor have I researched this in depth I only suffer a mild form of it but it has close to gone now with the weight loss. I had mad more asumptions on the why it had improved for me. I am sure tho that you should be able to find information out there on the internet.

applesauce
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NutMeg
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Female
Number of posts : 769
Location : Australia
Registration date : 2009-12-15

PostSubject: Hidradenitis Suppurativa   Fri 19 Feb 2010, 8:56 am

HS Link

I've suffered from this for 22 years now. Just wondering if anyone out there does as well? Did it get better after some weight loss? During my thin moments, I don't remember there being as many flare ups and if there were they weren't as bad as I get them now.

Thanks in advance,
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